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The Ups of Downs

Fiona Bruce MP recently met with representatives from The Ups of Downs in Parliament to discuss how to ensure people with Down syndrome are given every opportunity to live their lives to the full.

Nicola Enoch (pictured with Fiona Bruce), founder of The Ups of Downs, which is a registered charity, has recently launched a website to inform parents with children who have Downs syndrome or are expecting to have children with Downs Syndrome. The website https://positiveaboutdownsyndrome.co.uk/ draws on experiences of parents who have children who have Downs syndrome, challenging the negativity, fear and ignorance around Downs syndrome.

Fiona Bruce said: “Having engaged with representatives from Downs groups many times over the years in Parliament, I was very pleased to attend this event and meet with representatives from The Ups of Downs. It was moving to hear of the work Nicola has undertaken and I support their campaign to increase understanding about Downs syndrome.”


Nicola Enoch and Caroline Warren, Trustees of The Ups of Downs said: “We were delighted to meet Fiona Bruce. Alongside many other parents, we are extremely grateful to Fiona for her ongoing support to the Down syndrome community and for highlighting many of our concerns, in particular issues around screening for Down syndrome and the lack of accurate, impartial advice available to those considering screening, expectant and new parents.  We were pleased to share with Fiona details of the recently launched website Positive about Down syndrome, which is written by parents for parents and reflect the realities of living with the condition in the 21st century.  www.positiveaboutdownsyndrome.co.uk”
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